The next group meeting will take place on Thursday June 14th from 6:30pm -8:30pm at

St Francis Xavier’s R C Church Hall (St Martha’s Hall)

1 Hope St, Falkirk FK1 5AT.

This will be an open meeting with tea and cake etc available. Come along and have a chat

This will also be the last meeting for Karen Herbert our Chairperson. Hopefully many of you will make it along to wish Karen farewell. On behalf of all at Falkirk M.E. Self Help Group we would like to thank Karen for running the group these last few years. We wish Karen all the best when she moves.

The next group meeting will take place on Thursday May 10th from 6:30pm -8:30pm at

St Francis Xavier’s R C Church Hall (St Martha’s Hall)

1 Hope St, Falkirk FK1 5AT.

This will be an open meeting with tea and cake etc available. Come along and have a chat.

Hi Tickets are now available on the Hippodrome website. You can get access via the Boness Hippodrome Facebook page by clicking on events or by phoning the box office.

Unrest

 

Twenty-eight year-old Jennifer Brea is working on her PhD at Harvard and months away from marrying the love of her life when she gets a mysterious fever that leaves her so ill she can't stand, confined to her bed , often in excruciating pain, and looking for answers. Disbelieved by doctors and determined to live, she turns her camera on herself and her community, a hidden world of millions confined to their homes and bedrooms by Myalgic Encephalomyelitis , also known as Chronic Fatigue Syndrome. The multi award-winning Unrest is, at its core, a love story. How Jen and her new

husband forge their relationship while dealing with her mysterious illness is at once heart-breaking, inspiring and funny.

Bracingly inventive and moving” The Observer

"Riveting...equal parts medical mystery, science lesson, political advocacy primer and even a love story." San Francisco Chronicle

The Hippodrome is proud to present this event in partnership with the ME Association and will be followed by a Q&A (speakers tbc)

Dir. Jennifer Brea / US/UK / 2017 / 1h 37m + intro + Q&A

 

The Hippodrome, Bo'ness on Saturday 2 June 2018
Doors Open at 1:45PM
Starts at 2:30PM
Individual Ticket Price: £5.40 - £7.00*
Group Ticket Price: £20.50*

*booking fee applies

Box Office: 01324 506850

 

 

An evening reception to be held at the Scottish Parliament on 30th January from 6pm to 8pm. The reception is being organised by a group of volunteers who are working to raise awareness of ME amongst MSPs. 


ME Action and Shella Films would like to request that we ask all our group's members to email their MSP and ask them to attend. There is a template email below and a link to get your MSPs contact details. 

The event is being sponsored by Ben Macpherson, MSP for Edinburgh Northern and Leith who has offered to help raise awareness of ME/CFS in Parliament. The event will highlight the need to provide effective healthcare in Scotland for the 21,000 people affected by ME and discuss the desperate need for research into this chronic, long term disease. We will also be showing an exclusive 20 minute excerpt from the Sundance award winning documentary, Unrest. There will be a photo call from 6.00-6.20. 

The director of Unrest, Jen Brea, will participate in the event via Skype.
Unrest tells the first-person story of Jennifer and her husband, Omar, newlyweds grappling with how to live in the face of a lifelong illness. But it is also a global story about an international community of patients with a serious, life-altering illness — millions suffering invisibly and left at the margins of medicine and science. Unrest has won awards at Sundance Film Festival and Sheffield Doc/Fest and has been shortlisted for the 2018 Oscars. 

It would make a huge difference if as many people as possible from our group email their MSP

 

You can get your MSPs contact details at this link: http://www.parliament.scot/msps.aspx

Template email to send to MSP:

 

 

Dear XXX, 

 

You recently received an invitation from Ben Macpherson MSP asking you to attend an event on 30 January at the Scottish Parliament. The event is hugely important to me as it aims to raise aware of ME/CFS amongst MSPs and their staff and to highlight how you can help people with ME living in Scotland.

 

There are estimated to be 21,000 people with ME living in Scotland, but there is not a single specialist consultant in the country and only one specialist nurse (in Fife). We are calling on MSPs to help us get the support we need and to explore how Scotland can effectively provide help for people with ME.

 

The event will include a short 20 minute excerpt from a film, Unrest, which tells the story of people with ME. Unrest won an award at the Sundance Film Festival and has recently been shortlisted for an Oscar in the documentary category. Jen Brea, Director of Unrest, will be speaking at the reception via Skype. There will also be a chance to meet ME charities, volunteers, carers and people with ME. 

 

[ADD ADDRESS SO LOCAL MSP CAN SEE YOU ARE IN THEIR CONSTITUENCY.]

 

[ADD A PERSONAL PARAGRAPH ON YOUR OR A FRIEND/RELATIVE'S EXPERIENCE OF ME, AND WHY YOU NEED MSPS TO SUPPORT PEOPLE WITH ME.]

 

I really hope you or your staff will come to the event on the 30th January at the Parliament. 

 

Regards, 

XXX

Action for M.E.’s new project in Scotland, Living and learning with M.E., will bring together people with M.E., as experts in their condition, to explore symptom management.

The project is funded by the Scottish Health and Social Care Alliance Impact Fund, and our aim is to build a knowledge base of lived experience that can be shared with others who are new to – or struggling with – M.E. We also hope to inform and influence the work of health and care professionals in Scotland.

We are looking for people with M.E. to take part in five free workshops from August to November 2015 in Falkirk, West Lothian and/or Edinburgh.

The purpose of these will be to:

  • use storytelling techniques      to explore you experience of M.E. in a supportive environment
  • identify any learning that      you would like to pass on, and learn about strategies that others are      using
  • learn about storytelling      techniques

Participants can also access individual coaching support to help you pass your learning onto other people with M.E.

The workshops will be facilitated by Michael Williams, who led our Storytelling project last year.

Based on learning from the workshops, we will produce a self-management resource for local support groups, individuals with M.E., carers and health care services. Participants will have a key role in shaping the resource and will receive a copy of the final publication

Please find below a pdf document giving more information about the project and a copy of the registration form (word doc).

 

Attachments:
Download this file (Intro to project.pdf)Intro to project.pdf[ ]299 kB
Download this file (registration form.doc)registration form.doc[ ]34 kB

We have updated our poster and have sent them out to local health and complementary health centres.

Please find a copy of our poster below.

You may obtain a copy of the poster by clicking on the pdf link below. 

 

 

 

Is supported by:-

Falkirk Council 

COMMUNITY GRANT SCHEME

 

We are pleased to announce that Falkirk M.E. self help group has been awarded a grant to cover the cost of our meeting room hire and newsletter photocopying costs for the period of one year. We would like to thank the External funding unit for their support.

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